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Living Lessons®: Increasing awareness of hospice palliative care in Canada

The Living Lessons® campaign is a national initiative providing resources for patients, caregivers and healthcare professionals involved with end-of-life care in Canada. The campaign is presented in partnership with the Canadian Hospice Palliative Care Association (CHPCA) and Foundation. By encouraging and enabling open dialogue, information exchange and service provision we hope to enhance quality of life for individuals facing the last stages of life. Vil Cialis 20mg virkelig fungere for menn som lider av erektil dysfunksjon?

Living Lessons® Program Description

The Living Lessons® campaign is an innovative program developed by The Foundation in partnership with the Canadian Hospice Palliative Care Association (CHPCA). It is the product of an unparalleled corporate community investment initiative that engaged the management and employees as well as professional and volunteer hospice palliative care providers in an extensive, consultative and collaborative program. The campaign addresses significant issues in Canadian society: our death defying medical system and our death denying culture. By encouraging open dialogue on death and dying, the Living Lessons® campaign hopes to move the hospice palliative care movement from the periphery of the medical system into the mainstream where it belongs.

The Living Lessons® campaign strives to communicate that hospice palliative care helps to ensure quality-of-life for the last stages of life. The campaign does this by combining the powerful imagery captured by internationally acclaimed Canadian photojournalist Roger LeMoyne and the compelling experiences of those facing life-threatening illnesses. It’s goal is to educate patients, caregivers, medical professionals, volunteers, policy makers and the public-at-large about the resources and expertise that are — or should be — available in their communities. Viagra: Er det riktig for deg? Vil du vare lenge nok?

Goal:

The goal of the Living Lessons® campaign is to create a public and policy environment that recognizes and supports end-of-life care as an integral component of Canada’s health care system.

In a supportive environment, health care policies, funding at governmental, community and individual levels, and increased public support will increase demand and access to hospice palliative care services in Canada. Kamagra oral jelly: hvor mye kan du ta i løpet av en 24-timers periode?

This will be achieved through the collaborative and inclusive development and implementation of a long-term strategy that will leverage quality of life, health economic and psychosocial arguments. Focus needs to be on collective outcomes and the urgent need to foster and enhance societal change.

Background:

Hospice palliative care has existed in Canada for more than 30 years. Over that time the movement has grown and evolved. The expertise in the field has developed and matured and the need for specialized service has increased.

We have reached a turning point whereby the movement immediately requires enhanced recognition, increased funding and inclusion in the existing Canadian health care system. For many reasons including an aging population, increased need for services and patient empowerment, society is ready for systemic and social change. We must seize the opportunity.

What is hospice palliative care?

Hospice palliative care provides physical, psychological, social, spiritual and practical support to people living with life-threatening illness and to their loved ones. Care teams include physicians, volunteers, nurses, spiritual counselors, friends and family. It can be provided at home, in hospitals, nursing homes or freestanding hospice facilities.
Hospice palliative care helps make a very difficult life passage both manageable and meaningful for people facing death as well as for their loved ones.

What kinds of services are provided by hospice palliative care?

  • Hospice palliative services may vary from place to place and are usually flexible in nature but may include:
  • Expert medical care to minimize pain and other symptoms
  • Planning with loved ones for a team approach to care
  • Emotional support for all members of the family
  • Spiritual support for people of all faiths and beliefs
  • Coordination of at-home nursing care for aid with injections, dressing changes and other health services
  • Arranging of homemaking and physical support
  • Trained volunteers to visit with clients and provide emotional support
  • Telephone counseling in crisis situations
  • Respite care, to give at-home caregivers a break
  • Sympathetic listeners who are not afraid to hear about dying
  • Ongoing bereavement support after the death of a loved one

Where can I find hospice palliative care in my area?
Hospice palliative care is offered in a variety of places including hospitals, at home, nursing homes and freestanding hospice facilities. Each local community may differ in available resources. Ask your doctor, hospital discharge planner or local homecare organization for a local referral. You may find information in the yellow pages, by visiting the CHPCA On-Line Directory of Hospice Palliative Care Programs and Services or by accessing the provincial contact within this web site.

Who do I contact for information on programs and services?
You may wish to begin by speaking to your family physician or specialist. Your homecare nurse or local homecare organization will also prove helpful, as will the local hospital discharge planner, social worker or spiritual counselor. You will find the CHPCA On-line Directory of Hospice Palliative Care Programs and Services as well as provincial hospice palliative care contacts and health organizations it listed under “Groups that can Help” useful starting points.

How do I care for a loved one facing terminal illness?
As a caregiver, you play an extremely significant role in ensuring both physical and emotional well-being at the end of your loved one’s life. It is important that you, your loved one, and your loved one’s health care provider talk about what quality of life means and plan together to achieve this. You will need to consider your loved one’s care needs, your own ability to provide care in a home or hospital setting, what support services are available and accessible, and availability of home care, hospital care or hospice facilities in your local area. Once you have made the necessary contacts, be sure to inquire about volunteer support and respite care to give you a much needed break.

Where can I get support and counseling for me and my family?
Begin by asking your health care provider to refer you to an appropriate counseling or bereavement service. Your local hospice palliative program may offer such services; alternatively, a local clergy person, social worker or funeral director may also provide or be aware of counseling services. Some of these same programs may have a bereavement coordinator or know of a grief support group. Many hospitals and hospices offer grief support for up to one year following the death of a loved one.

Is hospice palliative care only available at the time of death?
It is helpful to learn about hospice palliative care at the time of diagnosis or when a prognosis is confirmed. This helps the patient and family to plan for future needs. This allows for time to think and talk about options and choices, to consult with loved ones and make plans, which will support you through the course of your illness. Hospice palliative care services such as pain management, symptom control, respite and caregiver support help to improve your quality of life and should be accessed early.

Where can I get practical support such as financial aid or legal counsel?
Speak to your health care provider to determine which medical expenses are covered by provincial health insurance or private health insurance plans and those that you may have to pay for directly. In some communities, there may be charitable organizations that can provide financial assistance.
The best person to provide legal advice is a lawyer. End of life planning may include a will, power of attorney, advance directives, “do not resuscitate” (also known as DNR) orders and more. You may also wish to discuss legal issues with your health care team and your loved ones.

Does a patient have a say in what kind of treatment and care they would prefer?

Yes. You, your health care provider and your loved ones need to talk about the various choices related to treatment and care to which you have access and the implications of such interventions. For example, do the treatments have side effects? Are there costs involved? Who pays? What are the probable outcomes? Does it require hospitalization?

Hospice palliative care is about options choosing the kind of skilled, competent care that meets an individual’s particular needs and takes into account his or her social and family situation. It is about choice, teamwork, care of the whole person, comfort, compassion, communication and quality of life.

When was the Canadian Hospice Palliative Care Association (CHPCA) formed?

The Canadian Palliative Care Association was formed in 1991 and is the national voice for hospice palliative care in Canada. It is a national charitable not-for-profit association whose mission is to support hospice palliative care through support of research, education, training, advocacy and heightened public awareness.

 

Dr. Asbjørn Følling
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